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Original Article
희귀질환 환자 치료 및 관리에서 지역 약국 약사의 역할에 대한 인식 조사
Community Pharmacists’ Awareness and Perceptions on the Role of Pharmacists in the Treatment and Management of Rare Disease Patients in Korea
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- 발행기관
- 한국임상약학회 바로가기
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- 간행물
- 한국임상약학회지 KCI 등재 바로가기
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- 통권
- 제35권 제2호 (2025.06)바로가기
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- 페이지
- pp.100-110
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- 저자
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- 언어
- 한국어(KOR)
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- URL
- https://www.earticle.net/Article/A469279
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원문정보
초록
- 영어
- Background: Despite the increasing prevalence of rare diseases and growing medical expenses, community pharmacists’ role in rare disease management remains understudied in South Korea, even as the government emphasizes the importance of specialized healthcare professionals in rare disease management. Methods: An online survey was conducted among 75 community pharmacists in South Korea from May to June 2022. The survey assessed pharmacists’ awareness of rare diseases, current practices related to rare disease management, and perceived roles of community pharmacies in rare disease care. Data were analyzed using descriptive statistics. Results: While most pharmacists (98.67%) were familiar with the term “rare disease”, only 33.33% accurately understood its legal definition. One-third (33.33%) of respondents had experience with rare disease patients, with an average of 7 patients per pharmacy. The main services provided were medication counseling (44.00%) and health supplement advice (28.00%). Pharmacists identified high accessibility (61.33%) as their primary advantage but cited lack of specialized knowledge (48.00%) and limited patient contact (56.00%) as major challenges. The majority (74.67%) expressed interest in rare diseases, with 40.00% suggesting specialized training as the most important factor for expanding pharmacists’ role. Conclusions: Although community pharmacists show strong interest and potential in rare disease management, their current involvement is limited by insufficient specialized knowledge and systematic support. Implementing professional education programs and establishing specialized pharmacy pilot projects could enhance pharmacists’ contribution to rare disease management, leveraging their accessibility and comprehensive healthcare capabilities.
목차
ABSTRACT
연구 방법
연구 대상 및 연구기간
연구 대상 선정 기준
자료 수집 및 조사 방법
통계 분석
연구 결과
연구대상자 기초 특성
희귀질환에 대한 인식
희귀질환 관련 약국업무에 대한 인식
고찰
결론
이해 상충
References
키워드
Community pharmacy services health services accessibility professional competence professional education rare diseases저자
간행물 정보
발행기관
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- 발행기관명
- 한국임상약학회 [Korean College of Clinical Pharmacy]
- 설립연도
- 1
- 분야
- 의약학>약학
- 소개
- 합리적 약물치료(rational pharmacotherapy)의 보장 및 증진을 궁극목적으로 하며 이를 달성하기 위해 임상약학의 발전과 회원 상호간의 친목을 도모한다.
간행물
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- 간행물명
- 한국임상약학회지 [Korean Journal of Clinical Pharmacy]
- 간기
- 계간
- pISSN
- 1226-6051
- 수록기간
- 1991~2026
- 등재여부
- KCI 등재
- 십진분류
- KDC 518 DDC 615
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